Between Care and Burden: The Experiences of Siblings of Individuals with Disabilities Using Augmentative and Alternative Communication
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Abstract
The aim of this article is to analyze the experiences of siblings of individuals with disabilities who use AAC. The study was conducted using a qualitative paradigm, focusing on the meanings attributed to relational, emotional, and identity experiences. Four adults participated in semi-structured interviews, and the data were analyzed thematically according to the approach of Braun and Clarke (2006). The results reveal the ambivalent nature of these experiences: sibling relationships are a source of closeness and development, but also emotional overload and limited autonomy. Participants report early adoption of caregiving roles, a sense of invisibility from parents, and responsibility for their siblings' futures. They also emphasize the importance of social support as a protective factor. The findings point to the need to include siblings in educational and therapeutic activities and to develop systemic support for this group.
This is the English version of the article.
Link to the Pollish version.
DOI of the Polish version: https://doi.org/10.16926/eat.2026.15.02.pl
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